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Connected Care Series: Patient-Generated Health Data

Learn trends related to patient-generated health data (PGHD), get an outlined vision for connected care, read about different use cases, and get the first steps for how to approach PGHD initiatives in your organization.


patient-generated health data

The growth in digital health technologies (e.g., mobile apps, wearables, virtual care) is rapidly increasing the volume and variety of real-time patient-generated health data (PGHD). As providers consider strategies to accommodate PGHD into care delivery models, they must make key decisions about how to operationalize the capture, management, and use of PGHD, while overcoming a number of challenges (e.g., mobile data security, patient engagement). Incorporating PGHD data into care management and delivery will determine providers’ effectiveness at managing the health of populations beyond the traditional care encounter.

In this report, we highlight some trends related to PGHD, outline a vision for connected care, cover different use cases, and give some initial considerations for how to approach PGHD initiatives in your organization.

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Introduction to PGHD and Connected Care

We are now entering an era in which patients can give clinicians data on their daily lives to provide a more complete, holistic picture of health. PGHD allows patients to actively manage their own health and empowers them to participate more in their own health care. In addition, clinicians can use PGHD to get a more comprehensive view of patients’ health beyond face-to-face visits.

1. Defining Patient-Generated Health Care (p. 7)
2. mHealth and Wearables Use on the Rise (p. 8)
3. A Vision for Connected Care (p. 13)

PGHD Use Cases

Current use cases with PGHD generally address disease management, patient engagement, andprevention and wellness in support of population health management.

4. Remote Patient Monitoring (p. 16)
5. Event Detection and Diagnosis (p. 22)
6. Prevention and Wellness (p. 25)

Key Considerations and Next Steps for Using PGHD

Although many PGHD initiatives are still in development, practice guidelines are emerging to help address common challenges. Health care organizations need to evaluate their current processes for collecting patient data, business goals for using PGHD, staff skills, and IT infrastructure.

7. RPM Is a Common Place to Start (p. 33)
8. Managing Large Data Volumes (p. 35)
9. Devices and Infrastructure (p. 36)
10. ONC’s Practical Guide for PGHD (p. 38)

For details on each of the 10 steps, read the full report.

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