Hospitals across the country are in different stages of new coronavirus' curve: some communities seem to be flattening the curve, others are swamped with Covid-19 patients, and others have very few cases with an expected apex in late April.
Cheat sheets: Your one-stop-shop for ventilator shortages
The virus' impact on patients is equally varied. About 25% of the population who would test positive for coronavirus are asymptomatic. Of those with symptoms, around 80% continue to experience relatively mild cases not requiring hospitalization. But what about that other 20% who become ill enough to require hospitalization and potentially require intensive care? Initially, we thought most of those patients would require a ventilator to assist their breathing. Now some are questioning whether a ventilator is the best treatment.
In any case, one thing has become clear and that is patients with Covid-19 can deteriorate very quickly. The uncertainty around the disease makes it imperative that providers have a conversation with that 20% about their wishes for care and discuss whether they would want to go on a ventilator when their oxygen saturation drops low enough. For hospital leaders, it's equally important that organizations have a mechanism in place to assure these conversations are occurring.
The best practice is to ascertain a person's wishes for care while they are well enough to tell you. Remember, when the patient has capacity, they are the final say on their care and putting someone on a ventilator requires informed consent. Below, I outline six steps you can follow to have that important conversation.
Covid-19 has changed many things about the way we provide care today, which means it's very likely you could be having this conversation while you're several feet away from the patient and unrecognizable under all your personal protective equipment. For many providers, this will mark a change from the typical in-person conversation in which you are at eye-level with the patient and close enough to touch an arm or hold their hand.
Or perhaps you're not even in the room with the patient, but are having the discussion via phone or video chat. In either scenario, many of the non-verbal expressions that are typically so important to our communication will be lost. That's why it's essential for providers to be very aware of their tone of voice and to consciously slow their rate of speech. You don't want to sound rushed or stressed, you want to speak clearly, calmly, and show empathy.
Consider phrases such as:
A person cannot truly make health care decisions if they do not first understand their diagnosis or diagnoses. As the provider, it's incumbent on you to be certain that the individual has the capacity to make decisions. In other words, are they aware enough about their condition to know what they are considering and the potential consequences?
Consider phrases such as:
If you have a patient with multiple morbidities ask:
It is difficult to imagine someone who has not heard about or been exposed to Covid-19 in recent months. However, you have no idea how much the patient in front of you has followed the issue, and more importantly, what information they have seen.
Is this someone who has seen enough of the news to know approximately 80% of cases may be very mild? Or, is this someone who has followed updates closely and can tell you just how many ventilators a state is looking for and how many people are dying a day?
Listen very carefully to what the patient says because it may give you many clues about their expectations and their desires. For instance, it's during this part of the conversation you may hear comments that help you understand the patient's beliefs about life. You might hear someone reflect they have had a life well lived and just want to be kept comfortable or you may hear this person is a fighter and will want you to do anything possible to fight until there is nothing else to do.
It's also possible the patient may want you to make recommendations for their care. If this occurs, be factual and clear about the patient's options and be honest about what scientists know and don't know about this disease.
Consider phrases such as:
Often when you talk with patients and/or families about resuscitation orders, we discuss the cardiac and pulmonary issues together; ergo, do not resuscitate. With what we are learning about the new coronavirus and how it attacks the lungs, it may make sense to discuss intubation and being dependent upon a ventilator separate from chest compressions. A patient may choose to be on a ventilator but not want chest compressions or vice versa. Listen; be present; and remember that the choice is theirs, not yours.
But when you have this conversation it's important that you share the facts as you know them and do not use leading phrases such as, "Do you want us to do everything for you?" or "Should we just let nature take its course – you do have other illnesses?"
Instead, consider phrases such as:
During this conversation, it's also important to summarize what you hear the patient saying:
Even though many people think about being severely ill, possibly dying, the current epidemic and constant news reports about patients dying makes it real. Be prepared for patients to have strong emotions when they learn about their diagnosis and hear about their care options.
During this part of the conversation, sometimes the best you can do is be present and quiet. Listen to the patient's concerns and do not dismiss their emotions.
Before you end the conversation, take another moment to reinforce what you discussed. Emphasize the excellent caregivers that are present and that they will care for the person as they wish. When you're writing your orders be specific; DNR only addresses resuscitation and no other aspects of care.
You may want to write to continue maximal medical therapies and then specify the patient's wishes for intubation or cardiac resuscitation. You may not have any family present for this discussion and when they hear their loved one's desires, they may disagree. Be prepared to explain the patient understood and what you talked about.
I know these are not easy conversations to have, but take this moment to check in with your own wishes and those of your loved ones. One of the greatest gifts you can give your loved ones is to let them know how you want to be cared for if you become critically ill, and you should also understand their wishes. Ask if they have any questions about what is happening with patients who contract Covid-19. Let them know that when they are ready to talk about their wishes, you are ready to listen.
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