Patients with rare hereditary cancer syndromes have complex risk management needs that require a greater level of coordination than most cancer programs are prepared to provide. Many programs fail to realize the efficacy of a high risk clinic for these patients, particularly when low volumes deter buy-in from leadership.
The Emily Couric Clinical Cancer Center is part of the UVA Health System, a
612-bed academic medical center located in Charlottesville, VA. The Cancer
Center established a high risk clinic for patients with Li-Fraumeni syndrome
(LFS), a rare genetic disorder that greatly increases the risk of developing
several types of cancer.
UVA’s Cancer Center addressed large gaps in care for patients with LFS by
establishing cross-departmental partnerships and using a coordinated care
team to deliver comprehensive, specialized risk management.
The high risk clinic provides specialized care for patients with LFS
who struggle to obtain appropriate risk management and care coordination.
Additionally, it is a market differentiator for the program and drives significant
downstream revenue, despite its low volumes.
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