Research

Shared Decision Making Resources Compendium for Cancer Programs

    A comprehensive list and evaluation of available shared decision making tools for multiple conditions, including breast, ovarian, lung, colorectal, and prostate cancers, is available here.

    ProHealth Prostate Cancer Decision Support Diagnostic

    Diagnostic tool designed to assist patients in evaluating the range of prostate cancer treatment options and to rate the advantages and disadvantages associated with each option.


    Thomas Jefferson Prostate Cancer Decision Counseling Program Frequently Asked Questions

    Provides patients with frequently asked questions about prostate treatment options to help patients clarify their treatment preference and discuss options with their care team.


    Massachusetts General Hospital Decision Quality Instruments

    Series of survey instruments that assess patients’ level of understanding, their goals and concerns about treatment, and their level of involvement in decisions about their care.

    Available instruments include:


    Massachusetts General Hospital Breast Cancer Initiative Frequently Asked Questions for Providers

    Find answers to providers’ frequently asked questions about Mass General’s Breast Cancer Initiative, a project aimed to help providers implement breast cancer decision aids across the country.


    Lung Cancer Screening Shared Decision Making Tools

    Tactics on lung screening shared decision making, including resources from Memorial Sloan Kettering and Maine Medical Center


    NCCN Guidelines for Patients

    The National Comprehensive Cancer Network (NCCN) aims to provide people with cancer and the general public with state-of-the-art cancer treatment information in easy-to-understand language. The NCCN Guidelines for Patients, translations of the NCCN clinical guidelines, are meant to help patients with cancer talk with their physicians about the best treatment options for their disease. They include:


    Knowing Your Options: A Decision Aid for Men with Clinically Localized Prostate Cancer

    Baylor College of Medicine and MD Anderson developed the tool for the John M. Eisenberg Clinical Decisions and Communications Science Center, with funding from AHRQ


    American Cancer Society Prostate Cancer Informed Decision Making Videos

    Videos that address many of the core questions and concerns that men have regarding prostate cancer screening. One is targeted to the general public and highlights the issues and questions that men face when deciding whether to get tested.

    The other video is designed for clinicians and provides an overview of the information they should discuss with their patients to assist them in making informed decisions about prostate cancer screening.


    Institute for Clinical and Economic Review: Your Options for Low-Risk Prostate Cancer

    Information on diagnosis, management options, and decision-making. Includes a tool to identify preferences and create a questions sheet to bring to physician appointments.

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